Links

Australian Hospital Sites
Centre for Children’s Cancer & Blood Disorders, Sydney Children’s Hospital (our Randwick apartment)
http://www.kids-cancer.org/

Acute Myeloid Leukaemia
National Cancer Institute (USA) http://www.cancer.gov/
NCI (USA) Childhood AML page http://imsdd.meb.uni-bonn.de/cancer.gov/CDR0000258000.html
NCI Young People with Cancer: A Handbook for Parents (recommended reading!!) http://www.cancer.gov/cancertopics/youngpeople/allpages
The Leukemia and Lymphoma Society (USA) http://www.leukemia-lymphoma.org/all_page?item_id=8459
Medline Plus (USA) Childhood Leukaemia page http://www.nlm.nih.gov/medlineplus/leukemiachildhood.html
Curesearch (USA) http://www.curesearch.org/
and their very good handbook (contains useful information on clinical trials)
http://www.curesearch.org/pdf/Family_Handbook_for_CureSearch.pdf

Bone Marrow / Stem Cell Transplant sites
National Cancer Institute (USA)
http://www.cancer.gov/cancertopics/factsheet/Therapy/bone-marrow-transplant.pdf
Blood & Marrow Transplant Information Network (USA / Canada) http://www.bmtinfonet.org/
American Society for Blood and Marrow Transplantations (heavy going medical info) http://www.asbmt.org/


Cancer support organisations

The Cancer Council (get ‘em to send you out a pack of info – its really good) http://www.cancercouncil.com.au/
The Leukaemia Foundation (great information, but apparently don’t donate so much to Sydney Children’s Hospital)
http://www.leukaemia.org.au/web/index.php

Australian Medical Research sites
Children’s Cancer Institute http://www.campquality.org.au/index.cfm

Medical Research Journals sites
(Sites to hit and read until you convince yourself that you don’t need to do it anymore)
Biology of Blood and Marrow Transplantation http://www.bbmt.org/home
Oxford journals – Annals of Oncology http://annonc.oxfordjournals.org/
Journal of Clinical Oncology http://www.jco.org/
Journal of Paediatric Haematology/ Oncology Click here
ACOR Leukaemia links http://www.acor.org/leukemia/
Pediatric Linx http://www.mdlinx.com/pediatriclinx/index.cfm
US Food and Drug Administration Oncology Tools site http://www.fda.gov/cder/cancer/
And for all the other journals (no really)
Oncology Journals a guide to internet resources for cancer http://www.cancerindex.org/clinks9.htm

Children’s Cancer support organizations (we just love these guys!)
Redkite (these are the folk that pay for the play therapists and social workers in the Sydney Children’s Hospital)
http://www.redkite.org.au/index.aspx
Camp Quality http://www.campquality.org.au/index.cfm
Starlight Children’s Foundation http://www.starlight.org.au/
Make a Wish Foundation http://www.makeawish.org.au/about/default.asp

For kids
The Adventures of Captain Chemo & chemo command (Highly recommended)
http://www.royalmarsden.nhs.uk/captchemo/index.asp
Our very own auntie (games to play online although you will have to download obscure plug-ins)
www.abc.net.au/playground
Children’s BBC (UK) http://www.bbc.co.uk/cbbc/
Discovery Channel (Aidan loves the dragon puzzles) http://kids.discovery.com/
Bob the Builder http://www.bobthebuilder.com/au/main.html
PBS Kids (games site takes a while to see around) http://pbskids.org/games.html
National Geographic for kids http://www.nationalgeographic.com/kids/
Disney http://www.disney.com

Other kids websites
Hamish McNalley’s View & Spew page http://www.hamishmcnally.com/

and adult ones
Goran’s Leukaemia website (his experience with septic shock is a useful lesson)
http://www.geocities.com/hotsprings/spa/4158/